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PA.S.PA.M.A. Targets
The Association
primarily aims at:
- the
protection of the rights and improvement of the quality of life of the
thalassemics through the systematic intervention and pressure exerted
on the state and other responsible authorities.
- the
encouragement of any kind of effort to develop the institution of
voluntary blood donation and to awaken the public opinion on matter of
blood donation.
- the
education proficiency and rehabilitation of the patients, in order to
achieve the social integration of the thalassemics.
The targets of the Association are also:
- to
inform the public and the thalassemicis on issues concerning the
problems and complications of the disease an their therapeutic
treatment.
- to
secure the right medical follow-up and treatment of disease with the
use of the latest protocols.
- to
inform the thalassemic patients of the latest treatment-methods, the
newest medical protocols and data.
- and
to inform the public, in order to prevent more children being born with
thalassemia, so that in the long run the disease will be extinct.
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