PA.S.PA.M.A. - Panhellenic Association of Patients with Thalassemia PA.S.PA.M.A. - Panhellenic Association of Patients with Thalassemia






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PA.S.PA.M.A. History

The Panhellenic Association of Patients with Thalassemia (PASPAMA) was established in 1980 and it is the first, on a wordwide level primary syndicate organization. (PASPAMA) - non profit - was created by the thalassemic patients themselves, with primary goal the protection of their rights and the improvement of the quality of their lives. It is mainly staffed and administrated exclusively by thalassemics, while its members are thalassemic patients from all over Greece.

The overall number of thalassemics in Greece is about 3100 and 2 of the 3 patients of them live in Athens. Our Association is the grounding member of:
During its long time presence, PASPAMA has been the first in claiming deter medical care for the patients, helping them with their professional rehabilitation, promoting their social status and generally their equal and full participation in our society.

The important social contribution of our Association, is proved and justified by the huge change of the way of life but also with the general improvement of the image of the patients. All this change was accomplished during the last 20 years, due to -  first of all - the progress and evolution of medicine and second thanks to the effective intervention and pressure exerted by our Association on the state authorities. Our defining intervention often succeeded in establishing positive measures and favorable legislation ameliorating therefore the social position of thalassemics.

Having purely and strictly a non-profitable character, PASPAMA is being financially depended mainly on the contributions of its members, supported by donations but also by organizations, which recognize its social work and support its continuity.

Since 1990, PASPAMA, publishes in a regular basis, every three months, its magazine “Themes of Thalassemia”, which for many years offers, with a direct and easy way, reliable and up-to-date information and keeps posted patients, their families and friends but also doctors and medical staff.
The magazine includes not only current scientific articles and articles of social interest but also information on any kind of development regarding issues that concern thalassemia.

Throughout its history, our Association had organized conventions and other scientific meetings, in order to inform the thalassemics of the latest methods for the therapeutic treatment of the disease, encourage the public to the proper and effective prevention methods and awake their awareness of voluntary blood donation in our country.

        








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