The Panhellenic
Association
of Patients
with Thalassemia (PASPAMA) was
established in 1980 and it is the first, on a wordwide level primary
syndicate organization. (PASPAMA)
- non profit - was created by the
thalassemic patients themselves, with primary goal the protection of
their rights and the improvement of the quality of their lives. It is
mainly staffed and administrated exclusively by thalassemics, while its
members are thalassemic patients from all over Greece.
The overall number of thalassemics in
Greece is about 3100 and 2 of the
3 patients of them live in Athens. Our Association is the grounding
member of:
During
its long time
presence, PASPAMA has been the first in claiming deter medical care for
the patients, helping them with their professional rehabilitation,
promoting their social status and generally their equal and full
participation in our society.
The
important social contribution of our Association, is proved and
justified by the huge change of the way of life but also with the
general improvement of the image of the patients. All this change was
accomplished during the last 20 years, due to - first of all -
the
progress and evolution of medicine and second thanks to the effective
intervention and pressure exerted by our Association on the state
authorities. Our defining intervention often succeeded in establishing
positive measures and favorable legislation ameliorating therefore the
social position of thalassemics.
Having
purely and strictly a non-profitable character, PASPAMA is being
financially depended mainly on the contributions of its members,
supported by donations but also by organizations, which recognize its
social work and support its continuity.
Since
1990, PASPAMA, publishes in a regular basis, every three months,
its magazine “Themes of Thalassemia”,
which for many years offers, with a direct and easy way, reliable and
up-to-date information and keeps posted patients, their families and
friends but also doctors and medical staff.
The
magazine includes not only current scientific articles and articles
of social interest but also information on any kind of development
regarding issues that concern thalassemia.
Throughout
its history, our Association had organized conventions and
other scientific meetings, in order to inform the thalassemics of the
latest methods for the therapeutic treatment of the disease, encourage
the public to the proper and effective prevention methods and awake
their awareness of voluntary blood donation in our country.